Many people say they like surprises. I am not one of them. I like to know what is happening, or what will be happening, especially to my body.
I’m sure many of you have had the experience of seeing a doctor, and, after the usual cursory exam, promptly tells you, “I’m scheduling you for a _____ test. (It doesn’t matter what it is. The blood pressure goes up regardless!) The doctor often goes on to say, “It’s probably nothing, but I just want to make sure it’s nothing to worry about.”
I’m sure he/she’s not as worried as I am!!!
Hopefully, at this point, you have the presence of mind to ask, “What exactly is this test for, and why do you think I need it?”
Again, hopefully you have enough rapport with your doctor that the answer will satisfy you. You NEED to know!
Now, most patients with Polycystic Kidney Disease have good relationships with their nephrologists. But such relationships ought not be taken for granted. If you don’t feel that warm feeling of confidence that “things” are “under control,” you need to speak up.
You don’t want any surprises!
Nothing should be “assumed!” It may take a play-by-play of what the test or procedure entails to get you to feel as comfortable as possible.
I don’t know about you, but I’m a much more co-operative and compliant patient when I’m educated about an upcoming test or procedure. And, often the procedure produces better results because the stress level is at a minimum.
In a similar vein, (pun intented!) knowledge and anticipation about potential PKD symptoms would be extremely helpful for newly diagnosed patients. I recently described my experience with a painful burst cyst, and I found out that some patients weren’t aware that such a possibility of such a painful event existed.
Well, I’ve got news for you: Neither did I until it happened to me! I would have reacted better if I knew that such a possibility existed.
Polycystic Kidney Disease has several related conditions that you wouldn’t connect to bad kidneys: Brain aneurysms and hernias (of which I’ve had two on the same side!) are potential problems.
Seek out as much information about your disease as is reasonably possible. Use the internet to research the latest developments. Any questions? Ask your doctor!
Keep surprises down to a minimum.
Here in New York City, there is a clothing store whose tagline is:
“An educated consumer, is our best customer.”
Become an educated patient!
Peace and Blessings!
Coach Richie Perl
