Comments on: The Odyssey Of A PKD Patient – Support 3 http://innergameofpkd.com/2009/07/28/the-odyssey-of-a-pkd-patient-support-3/?utm_source=rss&utm_medium=rss&utm_campaign=the-odyssey-of-a-pkd-patient-support-3 Easing Your Journey On Your PKD Odyssey Tue, 14 Feb 2012 19:33:12 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: CoachRichie http://innergameofpkd.com/2009/07/28/the-odyssey-of-a-pkd-patient-support-3/comment-page-1/#comment-17 CoachRichie Sun, 30 Aug 2009 00:06:49 +0000 http://innergameofpkd.com/?p=113#comment-17 Hi.Liza! You actually hit the nail on the head! There are "two you's," but the healthy,every day "you" is no more. That "you" no longer exists in the present. However, it does exist in your past. This "past, healthy, every day you" will always be accessible to you in your memory, and you will access her often. Give yourself the gift of time to get used to your "new self." Have no fear--she's very much like your "old self." She's just on a new adventure, with plenty of company. Your on the "PKD Odyssey," and it won't be dull! I'm sure your "new self" has courage, optimism, and "positive expectancy!" Contact me again if you want to discuss your "new self." Liza, I'd like to introduce you to Liza! I'm sure you'll like her a lot! Peace and Blessings! Coach Richie Perl Hi.Liza!

You actually hit the nail on the head!

There are “two you’s,” but the healthy,every day “you” is no more. That “you” no longer exists in the present.
However, it does exist in your past. This “past, healthy, every day you” will always be accessible to you in your memory, and you will access her often.

Give yourself the gift of time to get used to your “new self.” Have no fear–she’s very much like your “old self.” She’s just on a new adventure, with plenty of company. Your on the “PKD Odyssey,” and it won’t be dull!
I’m sure your “new self” has courage, optimism, and “positive expectancy!”

Contact me again if you want to discuss your “new self.”

Liza, I’d like to introduce you to Liza! I’m sure you’ll like her a lot!

Peace and Blessings!
Coach Richie Perl

]]> By: Liza http://innergameofpkd.com/2009/07/28/the-odyssey-of-a-pkd-patient-support-3/comment-page-1/#comment-16 Liza Sat, 29 Aug 2009 22:27:37 +0000 http://innergameofpkd.com/?p=113#comment-16 This is the first PKD site that did not make me want to give up and call it a day. Most are so depressing and down grading that it makes you want to give up all hope. I was diagnosed 5 years ago and up until this past month was the healthiest person I know with PKD. Acutally I think I still am, but my doc ( a great guy) let me know my last test results showed a slight decrease in kidney function. My husband is fine with it, my doc is fine with it, I however have had a bad reaction to it. I think I was living in a world of denial that I would be one of the 40 % that did not have serious issues from this disease. I am a bit thrown. You have to understand that I never even get colds. Everyone wishes they were as healthy as me. But it feels as though there are two "me's". The healthy every day me, and the PKD me. Try as I might I can't wrap my mind around how to think and feel about this. This is the first PKD site that did not make me want to give up and call it a day. Most are so depressing and down grading that it makes you want to give up all hope.
I was diagnosed 5 years ago and up until this past month was the healthiest person I know with PKD. Acutally I think I still am, but my doc ( a great guy) let me know my last test results showed a slight decrease in kidney function. My husband is fine with it, my doc is fine with it, I however have had a bad reaction to it. I think I was living in a world of denial that I would be one of the 40 % that did not have serious issues from this disease. I am a bit thrown. You have to understand that I never even get colds. Everyone wishes they were as healthy as me. But it feels as though there are two “me’s”. The healthy every day me, and the PKD me. Try as I might I can’t wrap my mind around how to think and feel about this.

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