We all know what  it’s like to start something new: Enthusiasm mixed with apprehension. The first day at a new school, or a new job, or in a new neighborhood. And, operating under the premise that “it’s only the first time once,” you find that the second day is a bit easier.  As you gradually get the “lay of the land,” you find that your “new” situation rather quickly becomes “old hat.”

Starting your “PKD Odyssey” is a bit different. You didn’t choose to go on this journey. Although you have a lot of apprehension, you don’t have any enthusiasm. In other words, you’re experience the negative force of fear, without the positive force of enthusiasm.

Your “PKD Odyssey” is tough to travel on as it is. Without some form of positive force acting upon you, you can easily succumb to discouragement, and even depression.

Now, I’m not going to give you some “magic formula” that will transform you into a happy-go-lucky person, smiling your way along the Odyssey of pain, illness, possible surgeries and dialysis. I don’t believe such a “magic formula” exists.

What I will discuss is the word “courage.” It comes from the French word for “heart.” My dictionary defines “courage” as “the mental or moral strength to venture, persevere, and withstand danger, fear, or difficulty.”

What do you think of that definition? Technically, it’s correct. But it seems to be missing what the word is all about: Heart!

“Heart” is what the Inner Game of PKD is all about. As a Life Coach and Trainer of NLP, I can show you all sorts of “mind games” that can be played to change attitudes about difficult situations. But if your heart isn’t in it, the results won’t be lasting.

So. how do you put “heart” in your journey? This is one of those answers that are “simple, but not easy.”

Love yourself. Treat yourself as you would a little child with PKD. Reassure yourself. Associate with “positive people.” (I know this may be difficult for some people.) Learn from people who are ahead of you the Odyssey.

Also, be very wary of the message forums. Many of the people who post on them are the ones with problems. This is not a criticism. They are seeking support in the best places. What I’m suggesting is that the people who are most successful on the Odyssey have no need to post on these message boards. My sister, who had her transplant donated by her husband never goes on the these boards.

Feed your heart! In whatever time in your day you have for yourself (!?), do what satisfies your inmost Self! Create! Express yourself (positively!) Don’t allow your disease to totally take over who you really are!

Be your own Best Friend Forever!

Maybe I can be your second best friend forever!

Peace and Blessings!

Coach Richie Perl