After participating in several on-line forums, and trying my “hand” at chat rooms, the following question occurred to me:
Would a teleconference call which would consist of a discussion of general and personal issues concerning PKD be something that would interest you?
There are many people on the PKD Odyssey, and in many different “places’ on the journey.
There are those who, at any given time, are in a position to offer assistance, and those who are in a position to accept assistance.
The benefit of a teleconference call is obvious – it’s in real time. Vocal expressions can be utilized to enhance the message which is being communicated. Clarifications as to the meaning of a communication can be made. More of the personality can come through. Sharing can be made on a deeper, more authentic level, leading to closer, interpersonal connections with people who are experiencing the Odyssey.
There will be no need to “explain yourself.” We would all be in the “same boat.”
Information, encouragement, and real help can be communicated in a real, human (not “virtual” or “sound bites”) manner.
The telephone has been around longer than the computer! Yet, as far as I know, the method of the teleconference call has not been used to connect PKD patients in a “live” community.
Maybe I’m just “old school,” but the “message board” method of communicating, though extremely valuable, seems to me to leave out a lot of the “human element.”
What did we do before e-mail?
We spoke on the telephone and wrote letters! I can’t remember the last time I actually wrote a personal letter to someone!
But I do recognize that expressing yourself to a willing listener can be very freeing. The power of speech should not be taken for granted.
How many of us wished we had more time to talk to our doctors about our concerns?
Wouldn’t talking to people who understand your situation be the next best thing?
I would really like to explore this concept.
I really would like your opinions.
Please offer your comments below, or at
Maybe something GOOD can happen!
Keep the lines open!
Peace and Blessings!
Coach Richie Perl
Certified Professional Coach
Certified Trainer of Neuro-Linguistic Programming
