As human beings, we have feelings. Joy, happiness, pleasure, satisfaction, and, of course, frustration, anger, sadness, despair, etc.
And, again, as human beings, we express these emotions. From laughter, to tears, from shouts of joy, to the silence of depression, our emotions get expressed. Externally…or internally.
We attempt to express our emotions constructively. Especially when we are around others. As much as our “loved ones” love us, it wouldn’t be helpful to continually express negative emotions around them. Nobody can tolerate a “whiner” for too long.
So when the “adversities” of PKD build up negative feelings within, what are some constructive ways of expressing them?
I know for myself, I give myself a little “self-indulgent time” to feel sorry for myself. You know , the old “pity party.” But I only do it for, oh, maybe half a day. Then, I find some chore that needs to be done and I do it. Activity usually “snaps me out of it.”
Journaling has been a useful tool. Getting internal feeling on paper in English (in my case) forces me to go through a process of “languaging” my feelings, and makes them more objective, almost “tangible,” and somehow, a bit disengaged from my “soul. The feelings seem to “transfer” from my “soul” to the notebook page.
And of course, sometimes it helps to talk. Preferably with someone who knows how to listen. This is not always easy to accomplish since most people don’t how to “listen.” There is a skill to listening.
A number of PKD patients have mentioned to me that they don’t get to express their PKD experience with their families. It’s understandable, but sad.
I wonder what it would be like if they actually would be able to talk to someone who knows how to listen, is empathetic, and who cares.
Sometimes, you just may need to talk, and “vent.” sometimes, you may need some feedback — someone to act as a “sound board.
“Do you think I overreacted when I put down my sister-in-law for serving a meal with all those potatoes, when she knows I can’t take too much potassium?”
Issues like these do come up in the life of a PKD patient.
I’ll let your imagination go wild with the above quote.
I understand. I know how to listen. I can help you “see” some of your issues from a more “positive outcome” viewpoint.
As I said…I can listen!
If you need a “listener,” please contact me at:
info@innergameofpkd.com and you will be heard!
I’m all ears!
Peace and Blessings!
Coach Richie Perl
Certified Professional Coach
Certified Trainer of Neuro-Linguistic Programming

you’re great!! your blogs always leave me thinking..I love it
Thanks, Michele!
I appreciate the positive feedback!
Coach Richie Perl
I keep a journal. Two, actually, one written, one typed. I write in either or both, depending on my mood at the time. Since I have other equally serious issues, my PKD is actually at the bottom of my list of things that bother me, even though it has had a significant impact on my life. I can’t really talk to my family, and my friends can only take so much, so I’m pretty much on my own. If it were just PKD, I’d probably be in better shape. Since it’s not…
Hi, Lisa!
Sorry about your issues.
Does your journaling help you?
Do you have other expressive outlets?
Perhaps you could share how you cope.
Peace and Blessings!
Coach Richie Perl
Thanks, Richie.
I do try to get out and do things. My journaling does help, quite a bit. Part of my mind is convinced someone will read it. Most of me, however, realizes that no one will. Still, it’s enough to know that, if someone wanted to, it’s all there.
When I can get to it, I try to get out with my camera. I’m better at observing than participating. That’s nothing new for me, I’ve always been that way.
I’ve tried other outlets as well, with varying degrees of success. The most effective ones for me are journaling, writing, music (prefer classical for a mood lift, but nearly anything will do), drawing, photography and travel – short trips, no more than 200 miles one way (it’s Colorado; there ain’t much any closer).
Lisa,
That’s terrific!
For many of us, there’s an inner part of us that needs to be expressed that isn’t necessarily meant for others to “listen.” Our private view of the world is precisely that. If someone else shows some interest in that expression, that’s gravy.
That being said, I’d be a willing “sharee” of your artistic expressions!
Peace and Blessings!
Coach Richie Perl