Comments on: Struggles of A Polycystic Kidney Disease Patient – Part 2 http://innergameofpkd.com/2009/12/21/struggles-of-a-polycystic-kidney-disease-patient-part-2/?utm_source=rss&utm_medium=rss&utm_campaign=struggles-of-a-polycystic-kidney-disease-patient-part-2 Easing Your Journey On Your PKD Odyssey Tue, 14 Feb 2012 19:33:12 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: CoachRichie http://innergameofpkd.com/2009/12/21/struggles-of-a-polycystic-kidney-disease-patient-part-2/comment-page-1/#comment-92 CoachRichie Mon, 28 Dec 2009 23:14:06 +0000 http://innergameofpkd.com/?p=378#comment-92 Thank you so much , Karyn, for you and Jerry's contributions to the PKD community! Peace and Blessings! Coach Richie Perl Thank you so much , Karyn,
for you and Jerry’s contributions to the PKD community!

Peace and Blessings!
Coach Richie Perl

]]> By: Karyn http://innergameofpkd.com/2009/12/21/struggles-of-a-polycystic-kidney-disease-patient-part-2/comment-page-1/#comment-90 Karyn Mon, 28 Dec 2009 21:41:47 +0000 http://innergameofpkd.com/?p=378#comment-90 While spirituality has never been my personal strong point, I must confess that if I think long and hard about the life that I've enjoyed for nearly 54 years it has truly been full of very interesting moments that I can chalk up to 'fate' or some sort of divine intervention. First....I am married to my brother's best friend....Jerry and I know each other for more than 40+ years. We were 'friends' until the day that I wrote him a letter while away in college and he answered it. Now mind you, he had ignored 2 prior notes, but answered this one. My father had told him that I had broken up with the guy I was dating....he had recently broken up with the gal he was dating for several years. So, was this timing, or fate? I suppose timing is important, but since several things had to line up just right for Jerry and me to connect, I tend to think it was fate. Since day one, I guess you could say that Jerry and I fulfilled something in this great universe of ours to become soul mates. We have spent our lives loving and respecting one another and have the uncanny ability to finish each others' thoughts. He is the man who came undone when the doctor told me I had PKD. He is the man who offered a kidney to me on the spot. He is the man who refuses to let me go to dr. appt's without him. He is the man who looks at me crosseyed if I take a day 'off' and don't wear any makeup and fears that I may not be feeling well. He is the man who has changed business relationships in our personal lives to make certain that those whom we deal with understand PKD and support our efforts to find treatments and a cure. He is the man who has run our golf tournament and who has grown this event into one that has raised about $500,000 for the PKDF since its inception. He is also the man who loves me unconditionally....my life is wonderful because of this beautiful man and the love that we share no matter what. Speaking of fate....I must also confess that as an asymtomatic PKD patient I might not have had the opportunity to discover that I had this disease had it not been for one nasty kidney infection and a hospital stay 10 years ago. In some inexplicable way, PKD has given me direction, drive, vision, and purpose. I love being part of the PKD Foundation and contributing whatever I can to improve the quality of life for those who suffer with this disease. I love being part of clinical trials, working as a full time volunteer, and meeting amazing people. I often wonder what I would be doing now if PKD did not reveal itself to me at that moment in time. But, here we are....and here I am....PKD patient....PKDF volunteer....and someone eagerly awaiting the start of a new decade, hoping that it brings new PKD hope, discovery, and healing to those who need it the most. Happy, healthy new year to you all, Karyn While spirituality has never been my personal strong point, I must confess that if I think long and hard about the life that I’ve enjoyed for nearly 54 years it has truly been full of very interesting moments that I can chalk up to ‘fate’ or some sort of divine intervention. First….I am married to my brother’s best friend….Jerry and I know each other for more than 40+ years. We were ‘friends’ until the day that I wrote him a letter while away in college and he answered it. Now mind you, he had ignored 2 prior notes, but answered this one. My father had told him that I had broken up with the guy I was dating….he had recently broken up with the gal he was dating for several years. So, was this timing, or fate? I suppose timing is important, but since several things had to line up just right for Jerry and me to connect, I tend to think it was fate.

Since day one, I guess you could say that Jerry and I fulfilled something in this great universe of ours to become soul mates. We have spent our lives loving and respecting one another and have the uncanny ability to finish each others’ thoughts. He is the man who came undone when the doctor told me I had PKD. He is the man who offered a kidney to me on the spot. He is the man who refuses to let me go to dr. appt’s without him. He is the man who looks at me crosseyed if I take a day ‘off’ and don’t wear any makeup and fears that I may not be feeling well. He is the man who has changed business relationships in our personal lives to make certain that those whom we deal with understand PKD and support our efforts to find treatments and a cure. He is the man who has run our golf tournament and who has grown this event into one that has raised about $500,000 for the PKDF since its inception. He is also the man who loves me unconditionally….my life is wonderful because of this beautiful man and the love that we share no matter what.

Speaking of fate….I must also confess that as an asymtomatic PKD patient I might not have had the opportunity to discover that I had this disease had it not been for one nasty kidney infection and a hospital stay 10 years ago. In some inexplicable way, PKD has given me direction, drive, vision, and purpose. I love being part of the PKD Foundation and contributing whatever I can to improve the quality of life for those who suffer with this disease. I love being part of clinical trials, working as a full time volunteer, and meeting amazing people. I often wonder what I would be doing now if PKD did not reveal itself to me at that moment in time.

But, here we are….and here I am….PKD patient….PKDF volunteer….and someone eagerly awaiting the start of a new decade, hoping that it brings new PKD hope, discovery, and healing to those who need it the most.

Happy, healthy new year to you all,
Karyn

]]> By: Lisa http://innergameofpkd.com/2009/12/21/struggles-of-a-polycystic-kidney-disease-patient-part-2/comment-page-1/#comment-87 Lisa Thu, 24 Dec 2009 20:38:57 +0000 http://innergameofpkd.com/?p=378#comment-87 I'm actually kinda curious how you decided to convert from Judaism to Catholicism. Purely curiosity. I'm an INTP; we wonder about things, and like knowledge for knowledge's sake. I miss hiking, myself. But then, I miss a lot of things that I no longer do, not directly related to my PKD. Some, not even indirectly related. I’m actually kinda curious how you decided to convert from Judaism to Catholicism. Purely curiosity. I’m an INTP; we wonder about things, and like knowledge for knowledge’s sake.

I miss hiking, myself. But then, I miss a lot of things that I no longer do, not directly related to my PKD. Some, not even indirectly related.

]]> By: CoachRichie http://innergameofpkd.com/2009/12/21/struggles-of-a-polycystic-kidney-disease-patient-part-2/comment-page-1/#comment-85 CoachRichie Wed, 23 Dec 2009 21:14:09 +0000 http://innergameofpkd.com/?p=378#comment-85 Hi, James! As a matter of fact, she does! My sister-in-law is 71 and is still working! And still married after 46 years! Her "window" of possible donation is probably closed though! Sorry! :-) Peace and Blessings! Coach Richie Perl Hi, James!

As a matter of fact, she does!

My sister-in-law is 71 and is still working! And still married after 46 years!

Her “window” of possible donation is probably closed though!

Sorry! :-)

Peace and Blessings!
Coach Richie Perl

]]> By: James Myers http://innergameofpkd.com/2009/12/21/struggles-of-a-polycystic-kidney-disease-patient-part-2/comment-page-1/#comment-84 James Myers Tue, 22 Dec 2009 22:56:43 +0000 http://innergameofpkd.com/?p=378#comment-84 Does she have any sisters? Does she have any sisters?

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