Comments on: Struggles of A Polycystic Kidney Disease Patient – Part 6 http://innergameofpkd.com/2010/01/07/struggles-of-a-polycystic-kidney-disease-patient-part-6/?utm_source=rss&utm_medium=rss&utm_campaign=struggles-of-a-polycystic-kidney-disease-patient-part-6 Easing Your Journey On Your PKD Odyssey Mon, 16 Jan 2012 15:40:38 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: CoachRichie http://innergameofpkd.com/2010/01/07/struggles-of-a-polycystic-kidney-disease-patient-part-6/comment-page-1/#comment-125 CoachRichie Mon, 25 Jan 2010 20:01:20 +0000 http://innergameofpkd.com/?p=401#comment-125 Hi, Alexandra! Clearly, allowing your kidneys to fail is a decision that is irrevocable. I am not sure what you are seeking. If you have made up your mind, then, I would think no discussion is necessary! If you. as you say, want to share "ideas," then, I wonder if you have really come to the decision to die! What ideas do you wish to share? With whom? To what end? What stage is your PKD currently at? What is your current life experience that would lead you to want to die? What would you have consider being "satisfied" with the people at the PKD Foundation? What were you seeking from them? I hope you consider some of these questions as you make your plans. Coach Richie Perl Hi, Alexandra!

Clearly, allowing your kidneys to fail is a decision that is irrevocable. I am not sure what you are seeking. If you have made up your mind, then, I would think no discussion is necessary!

If you. as you say, want to share “ideas,” then, I wonder if you have really come to the decision to die!

What ideas do you wish to share? With whom? To what end?

What stage is your PKD currently at?

What is your current life experience that would lead you to want to die?

What would you have consider being “satisfied” with the people at the PKD Foundation? What were you seeking from them?

I hope you consider some of these questions as you make your plans.

Coach Richie Perl

]]> By: Alexandra http://innergameofpkd.com/2010/01/07/struggles-of-a-polycystic-kidney-disease-patient-part-6/comment-page-1/#comment-124 Alexandra Mon, 25 Jan 2010 18:46:04 +0000 http://innergameofpkd.com/?p=401#comment-124 I just joined this and am now wondering a bit if I should have or not. I have spoken at length with some of the representatives at the PKD foundation without much satisfaction. Is there any room on this blog for someone who would like to discuss living and dying with PKD I am a single 70 year old woman who has had a terrific life and is planning to let my kidney's fail and die when the time comes.....This is a life choice and I am wondering if there is anyone else out there who has made a similar decision....I would love to share ideas and stories. Thanks Alexandra I just joined this and am now wondering a bit if I should have or not. I have spoken at length with some of the representatives at the PKD foundation without much satisfaction. Is there any room on this blog for someone who would like to discuss living and dying with PKD I am a single 70 year old woman who has had a terrific life and is planning to let my kidney’s fail and die when the time comes…..This is a life choice and I am wondering if there is anyone else out there who has made a similar decision….I would love to share ideas and stories. Thanks Alexandra

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