Comments on: What Keeps a Polycystic Kidney Disease Patient Up At Night?

By: CoachRichie

CoachRichie — Sat, 13 Nov 2010 02:07:00 +0000

Tameisha,

Do you know a doctor who could refer you to a renal social worker for further assistance?

Peace and Blessings!
Coach Richie Perl

By: tameisha Giddens

tameisha Giddens — Fri, 12 Nov 2010 13:56:35 +0000

scared and afraid since diagnosed 3 years ago no meds no insurance tried disability no luck headaches kil me

By: Steve Jackson

Steve Jackson — Mon, 01 Feb 2010 23:26:33 +0000

@ Lisa
I went 2 full years with on insurance,my nef keep me in B.P.meds with samples that he had in his office pluse he reduced fees till I got coverage,try talking to your doc and tell himor her the whole story they ma help you out.
Good luck and God Bless
Steve

By: Lisa

Lisa — Tue, 26 Jan 2010 00:54:17 +0000

I’ve been trying to find some sort of coverage for nearly two years, actually. There is a program here in Colorado, but you have to have a hard rejection from another insurer, and they won’t give that – they’re all so desperate for customers.

Basically, I’ve hit a point where I’m pretty much giving up; at least, with the kidney thing. I’m working with the other unrelated (or indirectly related) issues so that maybe I can find myself in a position where I can take care of things once again.

So I guess it’s giving up but not totally.

By: CoachRichie

CoachRichie — Sun, 24 Jan 2010 16:50:41 +0000

Hi, Lisa!

Yes. These are the things that keep you up at night.

Not being a doctor, I comment an YOUR physical symptoms.

All I can say is, in MY experience, the nausea and fingernail problems were symptoms I did experience. The nausea went away with dialysis. I didn’t notice my fingernails getting stronger until about 4-5 months after my transplant.

I am still on BP medication. (Procardia XL to be precise.)

I never had headaches at any time in my life.

But, as you understand, this is ONE person’s experience.

Obviously Lisa, the “assignment” for you is to figure some way to get some kind of health care coverage.

I’m curious as to what you have done to investigate possible ways of obtaining some sort of coverage.

I’m sure your story will be of interest to others in similar situations.

Lisa, be assured of my constant good wishes for you.

Peace and Blessings!
Coach Richie Perl

By: Lisa

Lisa — Sat, 23 Jan 2010 00:31:25 +0000

Hmm, sounds interesting. Making fears less vague to help reduce anxiety. It does feel like I’m the only one dealing with things like this, although I’m sure I’m not. Feel free to use any of this if you want.

I don’t have insurance. That’s what keeps me up at night most. Because of that, I can’t really address most of these:

Is my recent increased nausea and decreased appetite related to my PKD?

What about my fingernails? I have ridges deep as the Grand Canyon.

My blood pressure is unchecked, because I can’t afford the meds I was taking. It was hard to control in the first place. How badly has that affected my kidney function in the 2 years it’s been untreated?

I have chronic headaches. How many of those are related to my PKD, directly or indirectly?

Most importantly, how much of my current mental health status is related to this perceived helplessness regarding PKD?