Life is short.
Many say that their lives “suck.”
Well, PKD “sucks.”
OK. Let’s agree on that.
Now what?
What’s your next move?
Are you just going to continue living a “sucky” life, putting up with being misunderstood? Feeling that the doctors aren’t listening to you? That you have a “potential” that isn’t quite being realized?
Why are you tolerating this state of affairs?
Yes, PKD is a “sucky” disease. But you are more than your disease. Much more.
I have had readers write to me of the frustrations they have experienced having PKD. Like I didn’t understand. Of course I understand!
You don’t have to tolerate being misunderstood by family and friends!
You don’t have to tolerate feeling that your doctors aren’t listening to you!
You can tap your “potential” to achieve goals that are very satisfying! That could also include deep relationships!
Look. Most people, PKD or not, have dreams, longings, and yearnings that will never be fulfilled. But many dreams are!
What might be the difference between one person fulfilling a dream and another person not fulfilling a dream?
What does it take to follow a dream to it’s fulfillment?
Work and persistence!
But before that, you have got to believe that the dream is possible for you to obtain!
If you don’t believe you can achieve it, you obviously wouldn’t start the process!
Do you believe that you can get your friends and family to understand you and thereby accept you more fully?
Do you believe that you can communicate better with your doctors such that you feel that you are listened to?
Do you believe that at least some of your dreams can come true?
(I was about to write, “Do you believe in miracles? Yes!”, but I didn’t want to get carried away! 
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If you feel that you need a little push, or kick in the butt, let’s talk!
info@innergameofpkd.com is my e-mail address.
Hey! You never know! An e-mail is free! So is my response!
I believe that you can have a great life!
Peace and Blessings!
Coach Richie Perl
Certified Professional Coach
Certified Trainer of Neuro-Linguistic Programming
Miracles are possible! Four years ago, this month, I was diagnosed with PKD. At that time, I was losing a child I so wanted, I had a thyroid problem (I weighed 115 lbs.), my gall bladder hurt and I found out my ex was cheating. I went to be retested for PKD on the assumption that I was just ruling it out. I had been tested when I was in my early 20′s and it didn’t show up then. Needless to say, the ultrasound took a lot longer than I expected, and I have cysts on most of my internal organs. At that point, LIFE REALLY SUCKED!
Four years later, I don’t tolerate much! I don’t have anymore issues with my thyroid, I had my gall bladder removed, I’ve learned to accept that one beautiful child is plenty, and most of the time I feel alright…and have I ever learned to communicate with my doctors!
I still have a sinking feeling when the month of March comes along, (Marchaphobia), so I overbook myself and become quite exhausted, oh, and then it’s April
Honestly, I think my Marchaphobia is on it’s way out too. It was very short lived this year.
And sometimes I actually feel great! I’m making a career change that I couldn’t manage four years ago, I’m even considering starting on another degree. My passion for life has returned. I don’t know what tomorrow will bring. Then again, who really does. I learn as much as a person can so that I can be as healthy with this disease as I possibly can.
I want to thank you, Richie, for being so open about your experience. It has lessened my fear on countless occasions. I’m glad you’re able to write again
Wow, Christi!
What a story!
You’re an embodiment of what I’m trying to “preach!”
You very clearly didn’t sell yourself short!
Look what happened in the last four years. It must be exciting to contemplate what the next four years might bring!
Hopefully you are making your story known to others with PKD. Many need to hear it.
Best of luck in future endeavors!
And, maybe you might wish to keep me informed on your progress!
Oh, and thank you for your kind words!
Peace and Blessings!
Coach Richie Perl