I’ve been writing posts to this blog twice a week for about eight months. I have had some fantastic responses. It’s been a joy to share my story and experiences with you.
Yet I feel unfulfilled.
I know I can contribute more.
But I can’t read your minds to know how I might be able to serve you in a more meaningful ways.
Writing blog posts is not the best means of communicating with you.
First of all, the obvious fact is that it’s written. Which means you don’t get the benefit of the non-verbal aspect of the communication that you would get if you heard my voice.
Blog posts are also not read in real-time. You may read these posts days after I have written them, and any comments made to them will happen days after I have forgotten the mind-set I was in at the time of the writing.
You understand that support is a two-way street.
I need to know what kind of support you need.
You have to let me know how I can continue to support you.
For me to write blog posts that aren’t helpful is clearly a waste of everybody’s time.
I’m asking you to help me help you.
Please write to me letting me know what you need to be supported on your PKD Odyssey.
I may be just the resource you need to help you overcome some obstacle on your path that is causing your life to be less than it might be.
Maybe you feel disconnected from your circle of friends and family because of your disease.
Maybe you’re discouraged because you aren’t able to perform to your usual level because of constant fatigue.
Maybe you feel you aren’t getting the best medical care possible for you.
Maybe you are so focused on a possible cure in the future that you are not focusing on your own self-care as much as you might be.
Maybe you’re walking around in the world wearing a mask in the attempt to hide your disease from others, and it’s taking a heck of a lot of energy out of you.
Whatever your challenge on your PKD Odyssey is, please let me know!
or please enter comments in the comment box.
You know friends, sometimes I feel that I’m writing this blog and it just goes out into the blogosphere and never returns! I hope that this isn’t the case!
Again, I’d love to contribute more. Please let me know how!
Thank You!
Peace and Blessings!
Coach Richie Perl
Certified Professional Coach
Certified Trainer of Neuro-Linguistic Programming
