No one can take away the burden that Polycystic Kidney Disease patients carry. Not doctors, not family, not friends.
Each PKD patient must bear his/her own burden in his/her own way. Clearly, that often brings on a sense of isolation. So, this in effect becomes an additional level of the burden — the disease, and the feeling of bearing it alone.
True. On-line and “live” support groups to assist in alleviating the sense of isolation. But, sometimes, just expressing the feelings of psychological fatigue over and above the physical fatigue in writing doesn’t always do the trick: The computer doesn’t respond in the way you would like it to!
Sometimes, you may want someone to share your feelings of rage, at God, at the doctors, at so-called “friends” who don’t “get it.”
Sometimes, you may want someone to give you the permission to cry, and be there to soothe you.
Sometimes, you want to share one of those little moments of triumph, like an improved reading on a blood test, or getting a good night’s sleep, or not experiencing a side effect from a medication.
And you want to share these feelings with someone who isn’t patronizing you. Like a John Wayne’s “Well good for you, little lady!”
You want to share these feelings with someone who has experienced these feelings, who has and still is to a degree still carrying that burden. Someone who has and is walking the walk.
Imagine sharing your burden with someone who will provide the “space” for you to feel perfectly comfortable in hearing what you have to say. Someone who will really LISTEN.
So that you feel UNDERSTOOD!
Someone who, after allowing you to express yourself, will help you discover ways of perceiving your burden in ways that will make it seem lighter.
As a Life Coach, I can work with you to uncover skills and capabilities that can be used to put greater meaning into your life. For instance, you may find that you can get satisfaction from writing, or doing craft work.
I heard of an individual who wrote a book while on dialysis.
Heck, these days, with on-line colleges, you can even study a favorite subject!
But mainly, I work with you not as a PKD patient, but as a human being who happens to have PKD.
Why not contact me and find out how being UNDERSTOOD can make a big difference in your life!
info@innergameofpkd.com is my e-mail address.
What have you got to lose?
I’m a very understanding guy!
Peace and Blessings!
Coach Richie Perl
Certified Professional Coach
Certified Trainer of Neuro-Linguistic Programming
