Congratulations on the success you’ve made of your life!
Clearly you have a lot of life to live!

Besides avoiding salt and taking BP meds, you’ve probably heard that meditation can hepl in lowering blood pressure.

If you haven’t already, you might consider learning how to meditate.

As for the apprehension of the future, I don’t think too many of us are immune to that!

Just keeping living “one day at a time!”

Peace and Blessings!
Coach Richie Perl

I still get worried and still have to take me high blood pressure medication and watch my salt intake. Its still scary as Im not sure when they will go but I am getting a Nephrologist and making the best of it.

I am going to donate my kidneys to research when I go in hopes they find a cure for PKD. I thought I would share my Story hopfully it will inspire others to keep pushing and not give up.

It will be a forever battle for me but I am full of armour and faith <3

Anyone out there live in Cincinnati? I have a nephrologist who messed up my BP meds big time, so I’m looking for a new recommendation.

Also, I have checked with all kidney disease organizations that I could find on the web in Cincy, that has support group meetings. I found it very helpful when I lived on the west coast.

Thanks, Betty

No, you are definitely not a hypochondriac!
I was once accused of that myself!

Also, it must be noted that the meds have their own side effects which can be debilitating.

In effect, every case of PKD is unique.

Thanks for bringing this up to the forefront of our minds.

Peace and Blessings!
Coach Richie Perl

I’m sure everyone with PKD has there own list of problems that are associated. As someone else said this disease can create different problems for each of us. I guess there is very little in our bodies that can’t be affected from this. I thought I was becoming a hypochondriac for a while.

Veins apparently are also affected and cause, easy bruising, difficulty with IV’s, eye blood vessel breakage (looks bad but doesn’t really hurt the eye, and red moles (which are really busted capillaries) to name a few.

The above were all confirmed by one or more of my physicians.

Hope you and all reading this are doing well.

Betty

Sure.

Remember, that male types, like me, never want to show any weakness or vulnerability. The “macho” aspect of guys is very important.
Wives, although perhaps more comfortable with acknowledging “weaknesses,” often forget about this “macho’ aspect that guys have.

What might be helpful, (and, not knowing you personally, I can’t be specific,) would be to approach the subject of PKD in a matter-of-fact manner.

In other words, approach the topic of PKD so as not to “awfulize” it. That is, treating the subject of PKD as some horrible, almost taboo subject.

For instance, something like, “You know, hun, I noticed that there are a bunch a PKD pages on Facebook with a lot of nice people on it. I think I’ll take a look and see what it’s all about.”

As the subject of PKD becomes more common and almost casual, there will less need for him to “push away” the subject..

Again, not knowing the specific circumstances, this is the approach that might be helpful.

Thanks for asking!

Peace and Blessings!
Coach Richie Perl

Yes. The creatinine is high.
At this point, getting informed as to the available treatment options is the highest priority.
Diet is also extremely important, as this is one of the few things a patient can control.

As for lifestyle, allow your mother to live as much as possible as she has always lived. Her body will tell her when she will be unable to do what she normally has done.

Search the web for dietary information for PKD. Keep monitoring the blood pressure. Hopefully, the nephrologist will monitor the other important indicators.

Be on the watch that her friends don’t abandon her. This illness is not contagious!

If she is able to use the internet, there are message boards and on-line “communities” for people with PKD.

Here’s one that I like:
http://www.dailystrength.org/c/Polycystic-Kidney-Disease-PKD/support-group

Above all, watch that your mother doesn’t get depressed.
An optimistic attitude is the best way to approach any illness!

Good luck to you and your mother!

Peace and Blessings!
Coach Richie Perl

My mother just diagnosed with PKD, She is 49 years old, right now her Sr. Creatinine level is 4.7 mg/dl . Strange thing is that we have no family history of this disease, still she is suffering from the same.

Already we have started taking medicines suggested by our nephrologist. But friends we need your suggestions/helps regarding the lifestyle, medicine, diet & the treatment which can help her in any ways.

We would really thankful for you help!!

Regards
Sushant

Peace and Blessings!
Coach Richie Perl